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“I have so many challenges taking care of him, because sometimes when he is sick, we are unable to take him to the hospital because there is no money for healthcare.”
Charity Daniel is 30 years old.
She lives in rural Kubwa Abuja. She doesn’t know when she was first diagnosed with sickle cell.
“I am always tired and sometimes feel weak because I can’t do most of the things my mates are doing, "
"It hasn’t been easy for me and my husband financially; my husband doesn’t have any tangible work or occupation that brings in any substantive income."
She stays at home in excruciating pain, resorting to cheap basic ineffective pain relief or native herbal concoctions until it goes away.
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Whenever she has a crisis, we are always afraid that she won’t make it, but somehow she gets to bounce back to life.
She [Lydia] tells us that Peter regularly refuses to take his medication which breaks her heart.
"Living with sickle cell anemia hasn’t been easy for me, I go through a lot of pain whenever am sick, it’s as if my whole body is on fire."
Hassan said that he is very grateful that his friends and family do not treat him differently rather they encourage him.
"I am currently training to be a hair stylist so as to be able to start up my own beauty salon and to save up for university by next year.”